Well, it is time to introduce Gemassist to Kentucky. It is a real complicated issue when you have had a stroke with a brain injury.
as a Project Manager. I would have had the invitees notified, restaurant set- up finished and do not forget totally confirmed date.
I got the restaurant; I got the $$$
but now I need to make the guess list. I need to call contacts.
i need my media person to make a simple flyer and order simple gifts
Now IT site management need to finish the site so I can complete all the other task. The bank log in needs to be confirmed and verified to add all collected money.
assistant assistant that is my Left hemisphere because I can not complete these task without her, Hey! Mallory are you ready!!!!
she is here tomorrow to complete these task with me
Geez! Why do I do this to myself?????
it is a good cause. I know I have been lucky and want to help others
that is my Pay IT Forward til my life can not do this anymore.
I am blessed and want to bless you!!!!
all the best have a great day!!
Deborah Marie - peaching around
My story is simple and short but lifelong. I started having disfigurement in my face and no one knew what it was. I saw several neurologists and finally it diabetic seizures. I was put on late adult seizure meds for almost 1.5years. I got terribly worse. I went to John Hopkins in Baltimore MD, and I was there for 1 hours. The doctor checked my neuro system and then he said, “you have hemiplegic migraines”. He wrote up info and said Atlanta doctors should know how to treat this rare migraine. It is not pretty if you look it up. CDC: rare diseases
Came home and went to a migraine specialist, he was doing testing on this migraine, and I did not know he was not using solumedrol around my head. He hit my spinal below around C1-C2 with this test medication and I got dysfunctional neurology. I look like I had palsy and my right side of my body moved without me. I could not see white light out of my right eye. My brain was fuzzy. My sisters cried and some could not see me. It was so bad. My best friend, Linda, was overwhelmed with tears and distress. Main objective was to get me to Shepherd Center Hospital on Peachtree St., Atlanta, GA.
I met several doctors due to the weird happening Dr. Darryl L Kaelin stepped up to the plate to help me. I was a great challenge. I went through Pathways at Shepherd Center in Atlanta, GA; I cried like a baby and had no clue why I could not t do the things I used to do. Lost my job, my husband became my provider. Dr. Darryl L Kaelin finally put a mixture of drugs and off I went to life somewhat. Doing the best, I could. He taught me about the brain and about neuroplasticity. My psychologist was appalled and sent me to Emory for a cognitive test. It lasted 2 days. She immediately requested disability and told me to make a will with the health care advisor to plan decisions if I went into a coma. I stayed in shock I believe for 3 years. My husband started having to take me to all his job sites and I started with the help of others by hiring people who would learn how to help me be as independent as possible when he was not around.
Dr. Darryl L. Kaelin saved my life and he moved to UofL Healthcare Frazier Rehabilitation Institute and that is where I go now in Louisville, KY for treatment and follow ups. I actually moved here to be at this institute so I can have a better life than the treatments I was getting in Atlanta, GA
I thought everything was over, but it was not; my trigeminal nerve on the right side where I had the migraine was beginning to be very painful in 2016. The pain increased till suicide seemed to be the answer; I believe in God, and it did not happen. After being rejected by Emory in my own hometown and Mayo Clinic; I kept searching if I wanted to live a somewhat normal life. Brain Expert, Dr Robinson in Atlanta GA looked at my film on a bad day and said “I can try something and let’s hope it works”. I was immediately signed up for Gamma Knife to get rid of the right side Trigeminal Neuralgia. It Worked!
Now, left hemisphere damage and right hemisphere damage has gone through neuroplasticity. I have other neurological issues, and age-related issues. No matter how many years, this is a hard life not having the brain you once had; life goes on. You stay optimistic and you have failures, it is your life and make the best of it.
Years later, I started getting right facial pain. Oh, how horrible that pain can be and the hemiplegic migraine with facial pain the treatment was not lasting long the full 3 months. Now, I am trying something else that is also giving me some relief. Hope it works for a few years or more. Live, Laugh and Love Deb Krupp
All 3 of the photo graphs are the Blue Danube in Germany. I have made various colors of it so
You can decide which you like.
If you think about life everyday is a different color or moment. A moment of memory about actions of yesterday that helps you become today at this moment.
Much Love, good health and happiness
I just can not believe that ER and hospital visits are so complicated for brain injury patients.
We do not have fast communication that is expected.
We have very unknown reaction and fear from the processing of information. Especially when doctors and nurses are not capable of expressing themselves in their own atmosphere. There are classes for bed side manners I am sure so take them.
I hope to help in the future to clear up some of these mistakes.
Have a lovely day!
Peaching Around - Deborah Marie
On the May 19th just do not know if I would be.
I have been blessed with a TBI and times it is hard to know "how sick I am"
I have also been blessed with a Hemiplegic Migraine that is very interesting trip!!!
There times when I go to bed at night and I really do not know if I am going to wake up.
There are other ills due to living out of the country and not being able to get a specialist even though tax dollars were paid.
We are lucky here that there is help if you really look for it. Yes, help if you really look for it.\
it is hard to look; it is frustrating to look but do it. Ask questions to other people to get help?
Did you ever question again later - why?
Well this day and age in time of opinions and government values of allowing people not to work
A time when you get a dangerous disease and fight for your life.
Brain injury patients was not put at the top of the list but considered normal and wait
Well, I get my daily help for brain injury
Researching more programs.
All the best!
My birthday is always at brain awareness week. Something tells me it was meant to be.
I have a lot to say but I am just going to share pic.
But it is blank.
Well got to fit that!!!!
While you sometimes do not have health problems beyond your brain injury.
There are some of us that do.
Brain Injury (TBI or ABI) has particular functions to each brain.
Yes! I believe Severe concussions come back!
Mine did at 60 years of age!
Wow! Trigeminal Nerve cane into my life like the most painful painful experience. It is hard to explain how bad the nerve comes back.
Here are some pictures from Wiki that I retrieved.
The blue is the major section and that is a bear that hurts till you can not think anymore. I had mine Gamma Knife out by The Brain Expert in Atlanta, GA.
We all want this over
We all wonder what it is all about
We all have so many questions
Well, I have a media person that has updated my Instagram @gemassistfoundation and linked to Facebook. It is sooo unbelievable the difference.
She is an Artist but also a computer wiz.... StudioNatk
I do not write as much as you I ought to on my Blog but it is really difficult to have free time.
Since my brain injury, I do not feel pain as others and I can get real sick and not know it till I am in an ER or in the Dr office every few days..
You have said it better than I - David Grant
I believe why you do not hear about Brain Injury. People are afraid it might happen to them. Do you know I have had people tell me that they would rather give to animals than to help Brain Injury patients help? You have the green ribbon; I made this design to get away from the ribbon and people realize when you wear this symbol that You are aware.
Surgery is soo scary for anyone but for a brain injury patient
Our risk is higher than normal
Any mistake and yes every time I go to hospital but Frazier Rehabilitation Institute
There are mistakes; doctors will not call drs
Doctors will not check with long term doctor about health
I made it again
Seizures and dysfunction, By the Grace of God
I am still here!
Please listen to me Doctors 🥼
It can happen; One second one moment
Your world changes
I have sold and had donations
I did not meet my goal but I have had help a
I think you very much!
It is very difficult for people to understand brain injuries.
How it is a long term life issue.
How much rehabilitation cost?
Well thank God
I can help others!7
All the best!!!!
My name is Deborah Marie. After my Brain Injury, I have become an artist in jewelry, pictures and cloth. I can not make a piece twice but I can design that piece once and then redesign it in another way!
Screens are not wide enought to show the brain and the designs with Foundations.
I have tried but I made it better.
Tired again. I am offline. Deborah Marie